TY - JOUR
T1 - El horizonte de la atención médica en pediatría: ¿qué hacer en el caso de niños que se encuentran en situación de abandono, conflicto, daño o peligro, aunado a una enfermedad grave?
T2 - ¿qué hacer en el caso de niños que se encuentran en situación de abandono, conflicto, daño o peligro, aunado a una enfermedad grave?
AU - Guadarrama-Orozco, Jessica H.
AU - Cantú-Quintanilla, Guillermo R.
AU - Ávila-Montiel, Diana
AU - Altamirano-Bustamante, Myriam
AU - Peláez-Ballestas, Ingris
AU - Caballero-Velarde, Cristina
AU - Juárez-Villegas, Luis E.
AU - de la Vega-Morell, Nahúm
AU - Kelly-García, Javier
AU - de Hoyos-Bermea, Adalberto
AU - Dorantes-Acosta, Elisa
AU - Gamboa-Marrufo, José D.
AU - Muñoz-Hernández, Onofre
AU - Garduño-Espinosa, Juan
N1 - Publisher Copyright:
© 2018. Hospital Infantil de México Federico Gómez, published by Permanyer México SA de CV, all rights reserved.
PY - 2018/5/1
Y1 - 2018/5/1
N2 - Background: Laws refer that minors do not have the capability to give informed consent for their own medical attention. However, there are special conditions in which they are allowed to decide about their health. The greater the judgment and experience limitations in minors, the less weight is given to the values and objectives they express. Furthermore, the more adverse consequences might be, the higher the level of authority that is demanded to decide on behalf of the minor, thus granting the state the capability to guarantee the well-being of the minor. Case report: A 12-year-old female patient was presented with a diagnosis of acute lymphoblastic leukemia, with precarious social and family background; evolution of the disease obstructed by the disregard of the treatment due to her unsanitary and extreme poverty conditions. Both of her parents died soon after the start of the treatment, and she was kept under the care of her half-sister of legal age. The work and the ethical dilemma of the pediatrician and the staff of Hospital Infantil de México Federico Gómez are exposed within the building of support networks with the objective of prioritizing the minor’s well-being, without allowing family break-up or disintegration, thus succeeding in her recovery. Conclusions: The case was submitted to the Hospital Bioethics Committee. Interinstitutional support networks were built to improve dynamics of the family, thus solving the needs of the minor. Despite the misfortune of the situation, the disease was successfully overcome.
AB - Background: Laws refer that minors do not have the capability to give informed consent for their own medical attention. However, there are special conditions in which they are allowed to decide about their health. The greater the judgment and experience limitations in minors, the less weight is given to the values and objectives they express. Furthermore, the more adverse consequences might be, the higher the level of authority that is demanded to decide on behalf of the minor, thus granting the state the capability to guarantee the well-being of the minor. Case report: A 12-year-old female patient was presented with a diagnosis of acute lymphoblastic leukemia, with precarious social and family background; evolution of the disease obstructed by the disregard of the treatment due to her unsanitary and extreme poverty conditions. Both of her parents died soon after the start of the treatment, and she was kept under the care of her half-sister of legal age. The work and the ethical dilemma of the pediatrician and the staff of Hospital Infantil de México Federico Gómez are exposed within the building of support networks with the objective of prioritizing the minor’s well-being, without allowing family break-up or disintegration, thus succeeding in her recovery. Conclusions: The case was submitted to the Hospital Bioethics Committee. Interinstitutional support networks were built to improve dynamics of the family, thus solving the needs of the minor. Despite the misfortune of the situation, the disease was successfully overcome.
KW - Bioethics issues
KW - Clinical ethics
KW - Clinical ethics committees
KW - Medical ethics
UR - http://www.scopus.com/inward/record.url?scp=85059451576&partnerID=8YFLogxK
U2 - 10.24875/BMHIME.M18000036
DO - 10.24875/BMHIME.M18000036
M3 - Artículo
AN - SCOPUS:85059451576
SN - 1665-1146
VL - 75
SP - 144
EP - 154
JO - Boletin Medico del Hospital Infantil de Mexico
JF - Boletin Medico del Hospital Infantil de Mexico
IS - 3
ER -