El horizonte de la atención médica en pediatría: ¿qué hacer en el caso de niños que se encuentran en situación de abandono, conflicto, daño o peligro, aunado a una enfermedad grave? ¿qué hacer en el caso de niños que se encuentran en situación de abandono, conflicto, daño o peligro, aunado a una enfermedad grave?

Jessica H. Guadarrama-Orozco, Guillermo R. Cantú-Quintanilla, Diana Ávila-Montiel, Myriam Altamirano-Bustamante, Ingris Peláez-Ballestas, Cristina Caballero-Velarde, Luis E. Juárez-Villegas, Nahúm de la Vega-Morell, Javier Kelly-García, Adalberto de Hoyos-Bermea, Elisa Dorantes-Acosta, José D. Gamboa-Marrufo, Onofre Muñoz-Hernández, Juan Garduño-Espinosa

    Producción científica: Contribución a una revistaArtículorevisión exhaustiva

    Resumen

    Background: Laws refer that minors do not have the capability to give informed consent for their own medical attention. However, there are special conditions in which they are allowed to decide about their health. The greater the judgment and experience limitations in minors, the less weight is given to the values and objectives they express. Furthermore, the more adverse consequences might be, the higher the level of authority that is demanded to decide on behalf of the minor, thus granting the state the capability to guarantee the well-being of the minor. Case report: A 12-year-old female patient was presented with a diagnosis of acute lymphoblastic leukemia, with precarious social and family background; evolution of the disease obstructed by the disregard of the treatment due to her unsanitary and extreme poverty conditions. Both of her parents died soon after the start of the treatment, and she was kept under the care of her half-sister of legal age. The work and the ethical dilemma of the pediatrician and the staff of Hospital Infantil de México Federico Gómez are exposed within the building of support networks with the objective of prioritizing the minor’s well-being, without allowing family break-up or disintegration, thus succeeding in her recovery. Conclusions: The case was submitted to the Hospital Bioethics Committee. Interinstitutional support networks were built to improve dynamics of the family, thus solving the needs of the minor. Despite the misfortune of the situation, the disease was successfully overcome.

    Título traducido de la contribuciónThe horizon of medical attention in pediatrics: What to do in the case of children who are in abandonment, conflict, harm, or danger situations in combination with a severe disease?: What to do in the case of children who are in abandonment, conflict, harm, or danger situations in combination with a severe disease?
    Idioma originalEspañol
    Páginas (desde-hasta)144-154
    Número de páginas11
    PublicaciónBoletin Medico del Hospital Infantil de Mexico
    Volumen75
    N.º3
    DOI
    EstadoPublicada - 1 may. 2018

    Palabras clave

    • Bioethics issues
    • Clinical ethics
    • Clinical ethics committees
    • Medical ethics

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